Help us Fund a Cure for the CSNK2B Mutation

The CSNK2B mutation, also known as Poirier-Bienvenu neurodevelopmental syndrome (POBINDS) (OMIM # 618732), is a rare genetic disorder first identified in 2017. POBINDS is a neurological disorder characterized in most cases by early-onset seizures, hypotonia, intellectual development (ID) and global developmental delay. The severity of neurological impairment is highly variable.

It is the mission of the CSNK2B Foundation to bring awareness and education to Poirer-Bienvenu Neurodevelopmental Syndrome (POBINDS) and to enrich the lives of those affected by accelerating research, treatments and by chasing a cure for CSNK2B.

We are asking for donations to fund research allowing us to study the CSNK2B mutation to find treatments and a cure for those affected.

Your generous donation to the Csnk2b Foundation will allow us to work closely with doctors and researchers motivated to help us study the CSNK2B mutation in hopes of curing those affected with Poirier-Bienvenu Neurodevelopmental Syndrome. 100% of your donations are tax deductible and all will go directly to research. Thank you so much for your support!