Miracles for Mighty Milo has raised $92,120 out of their goal of $500,000

$92,120 / $500,000
18% of goal
400 supporters
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How You Can Help

Solutions for SPAX5 $500,000

Spastic Ataxia Type 5 (SPAX5) is an extremely rare autosomal recessive mitochondrial disease caused by pathogenic mutations in both copies of the AFG3L2 gene. It is a neurodegenerative life-limiting disease that affects Milo and possibly others. Your donations will help us explore various treatment options to slow disease progression through drug repurposing or pluripotent stem cells transplants. While also evaluating collaborative opportunities for more long-term therapeutic advancements through gene editing therapies.

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About the Campaign


We're committed to finding a miracle for Milo. Milo has an incredibly rare disease and we will stop at nothing to find a cure or life-saving treatment for him and possibly others.


Our mission is to spread awareness for Spastic Ataxia Type 5 (SPAX5) a rare mitochondrial disease, and to raise money in hopes of finding a treatment that could save his life. SPAX5 is a progressive neurodegenerative disorder characterized by early-onset spasticity resulting in significantly impaired ambulation, cerebellar ataxia, oculomotor apraxia, dystonia, and myoclonic epilepsy.


We created this campaign for everyone to contribute at various impact levels. Be sure to review the ways you can make an difference and please share this page with your family and friends.


Your involvement is critical to our success and hopefully providing a miracle for Milo and possibly other children similarly affected. 


Thank you again for your help and please visit www.MightyMilo.org to connect with us and find out about other ways you can help.

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