Cupcake Gala

support joy for leukodystrophies

About the Campaign

The Calliope Joy Foundation raises funds to help children living with leukodystrophy through improved care, research, and family support. Join us for an evening to benefit the Leukodystrophy Center of Excellence at the Children's Hospital of Philadelphia and The Calliope Joy Foundation.

The Cupcake Gala is a celebration of the breakthroughs to treat leukodystrophies and lysosomal storage diseases. This year we want to highlight the promise of gene therapy. The 2022 gala raised $500,000 to support research and initiatives at the Children's Hospital of Philadelphia. We will host over 300 guests at the Rittenhouse Hotel in Philadelphia ranging from patients, families, industry partners, researchers and clinicians, media, and elected officials. Funds raised from this year's Cupcake Gala will directly support ongoing research and therapies for the leukodystrophies as well as patient care. This gala will provide an opportunity to honor families and the leukodystrophy community for all the progress that has been made.

 

Your involvement can make a difference for leukodystrophy research and advancements! Thank you!

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Travel Assistance $50

Sponsor and support a leukodystrophy family in need of travel assistance. This gives them the best access to care and medical professionals to help their family!

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Psychological Support $100

This money will go towards supporting leukodystrophy families and covering costs of psychological support with a rare disease psychologist.

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Accelerated Diagnostics $500

Support our efforts for newborn screening and improved diagnostics to be sure patients receiving an MLD diagnosis get access to life-saving treatments in time.

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Top Individuals

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View Top Individual - 'Andy Shenker' fundraiser page using image
Andy Shenker

Andy Shenker has raised $3,421 out of their goal of $3,000

$3,421 raised (114%)
View Top Individual - 'Marly McGowan' fundraiser page using image
Marly McGowan

Marly McGowan has raised $0 out of their goal of $500

$0 raised (0%)

Campaign Activity

See who supports your cause and what they have to say about it!

M

Michael Collins donated $100.00

great cause - glad to help - good luck

8 months ago
P

Paul Edmondson donated $100.00 and generously covered the transaction fee

9 months ago
S

Simon Hawkins donated £20.00 and generously covered the transaction fee

9 months ago
J

Jason Mallory donated $125.00 and generously covered the transaction fee

The Calliope Joy foundation has not only played an instrumental role in bringing therapies to patients with MLD but served as an inspiration to patients, advocates, and medicines developers across the rare disease community. Keep up the amazing work!  

9 months ago
E

Eugene Schneider donated $100.00 and generously covered the transaction fee

9 months ago