Clinical Trial Readiness at Boston Children's Hospital

Help us to create a better understanding of our patients

Clinical Trial Readiness at Boston Children's Hospital has raised $86,573 out of their goal of $109,000

$86,573 Raised
$109,000 Goal

About the Campaign

There is an urgent need for patient led research initiatives to create a better understanding of patients with rare neurological diseases.

Your contribution will help to provide funding for clinical assessments and a robust natural history which will assist in preparation for clinical trials of patients with pathogenic variants on the MEF2C gene.

Your involvement is critical to our mission to accelerate treatments for our patients, and to create synergies within the rare neurological disease arena. 

We are grateful for your support!

Dr. Wendy K. Chung, Chief of Pediatrics, Boston Children's Hospital, and Mary Ellen Avery Professor at Harvard University



Our Patients



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