Did you know? June 23^rd is Global HHT Awareness Day. This date wasn’t chosen at random – it honors the life of Grace Nolan, who sadly passed away at the young age of 9 from complications of HHT.

Grace suddenly became ill on a family vacation with severe nosebleeds and coughing up blood. Grace went to the hospital eight times, but she and her family wouldn’t hear the term “HHT” until the ninth visit. Grace’s father, Mike, called Cure HHT for guidance. The family lived in Ireland, so the Foundation arranged a visit with our HHT Center in London. Tragically, Grace lost her life one week before that appointment when a pulmonary AVM ruptured. Grace’s birthday is June 23^rd.

Since then, her family has championed for HHT awareness and research. Never underestimate the power of sharing your story and your voice! Thank you to The Grace Nolan Foundation for generously agreeing to match the first $25,000 raised on June 23rd. We are happy to report that we met this match!

Please give generously if you can. 

Every dollar raised, every moment volunteered, and every voice shared brings us one step closer to a world where HHT is no longer a life-threatening condition. Here’s how you can join the movement:

• Donate: Your financial support fuels our initiatives and drives progress.
• Fundraise: Start a fundraising campaign by joining our HHT Changemaker Challenge! Click here to learn more.
• Advocate: Use your voice to raise awareness and influence policy.
• Share: Spread the word about HHT and our mission on social media and within your networks.
  
  
  
  
  
  When David and his family received an HHT diagnosis in 2022, he quickly went to work to make a difference. David teamed up with Cure HHT and has played an important leadership role in our advocacy efforts, including organizing a Capitol Hill Day in May and developing proactive advocacy strategies to help us increase federal funding for our centers. “My goal is to put Cure HHT out of business. With their leadership, we are going to cure this disease. And then we will turn our attention to helping the amazing Cure HHT team find another line of work!” - David Vaughn

Thanks to the unwavering support of our community, we have: Increased awareness, improved diagnosis, advanced research, and enhanced treatment. 

However, the need for continued innovation, research, and support is greater than ever. This is where you come in. By joining the HHT Changemakers, you become an integral part of our mission to drive transformational change.

Why Your Support Matters

What your contribution to Cure HHT can lead to

• New Discoveries: Funding cutting-edge research that could unlock new treatments and potential cures.
• Better Resources: Developing educational materials and resources for patients, families, and healthcare providers.
• Community Support: Expanding our patient support programs, connecting individuals with the resources they need to manage their condition.
• Advocacy Efforts: Amplifying our voice in advocating for policy changes and increased funding for HHT research.

HHT Awareness Month Sponsor