Imagine your child experiencing an unexplained sudden loss of basic functions and abilities – 

a toddler who once walked and ran, suddenly stumbling with each step; 

an infant who once smiled and cooed, now crying inconsolably for every waking hour; 

a high school cheerleader losing all muscular control and shaking violently on the sports field; 

each of these real-life examples is the result of a disease group called Leukodystrophies.

Leukodystrophies affect 1 in 4,700. Because of the rarity of these diseases, they remain virtually unknown, even in the medical community. This results in frequent misdiagnosis, as well as insufficient therapies and treatment options once a correct diagnosis is reached. 

Although, currently there is no cure,
ALL LEUKODYSTROPHIES ARE TREATABLE!

Individuals affected by Leukodystrophies deserve expert medical care, essential to providing timely treatment and therapies to vastly improve health and overall quality of life. The Leukodystrophy Care Network (LCN) is working to accomplish this.