Help us learn more about Myhre

Your fundraising means a brighter future 

Myhre Syndrome Fundraising has raised $292,717 out of their goal of $500,000

$292,717 Raised
$500,000 Goal

About the Campaign

Myhre syndrome is an extremely rare genetic disorder,
that affects many of the body systems.


Each Myhre warrior is different but common characteristics include hearing loss, stiff joints, short stature, intellectual disbility, cardiovascular and respiratory problems that can lead to life-threatening complications.

Currently there is no cure.

With your help we can get more answers, fund more research and strive to find a cure to stop the progression of this ultra-rare condition. 

Support a Fundraiser

Sign up in support of this campaign!
Start Fundraising

Campaign Activity

See who supports your cause and what they have to say about it!