In 2015, the Usher Syndrome Coalition, with the help of Senator Ron Wyden and staff, declared the third Saturday in September as “Usher Syndrome Awareness Day,” a day that falls near the autumnal equinox in the northern hemisphere. Since then, our incredible community has Owned the Equinox each year leading up to "our" day, clocking thousands of steps and miles, tweets and posts, all in the name of raising awareness for Usher syndrome, the most common genetic cause of combined deafness and blindness.

Join us in supporting the community building efforts of the Usher Syndrome Coalition in honor of our fourth global Usher Syndrome Awareness Day on Saturday, September 15, 2018.

Why Own the Equinox?

The autumnal equinox in the northern hemisphere marks the start of days that contain more darkness than light. It is a powerful metaphor for the threat of Usher syndrome. By Owning the Equinox and spreading global awareness for Usher syndrome, our community has the power, today, to stop our world from sliding into darkness.

GET STARTED

Click "Become a Fundraiser" above to create your personalized page and begin sharing how you're Owning the Equinox for USH awareness! 

Learn more about the Usher Syndrome Coalition.