- In Memory of Pat Carr -

We are heartbroken, Cal's dad and the foundation's co-founder, Pat Carr, succumbed to multiple myeloma on April 16th. 

He was surrounded by friends and loved ones, including his cherished children: Camille (age 20), PJ (age 16) and Cal (age 10). He was a champion for children and worked tirelessly to see a cure for MLD and related disorders.  

In lieu of flowers, please make a gift in honor of Pat to support families and children impacted by leukodystrophy.  



The Calliope Joy Foundation

How To Help

Travel Grant Program $25

$25 per month will fund a travel grant for a family to see a specialist in the US or abroad.

Donate

Care Package Program $50

$50 per month for one year could provide care packages to five families facing an MLD diagnosis.

Donate

Disney Family Conference $100

Your donations make it possible to bring together MLD families from around the world for a day of hope and community at our inaugural Disney Family Conference.

Donate

Accelerating Diagnostics $500

Support our efforts for newborn screening and improved diagnostics to be sure patients receive an MLD diagnosis in time to get life-changing and life-saving treatments.

Donate

Cures - Community - Cupcakes

@cals_foundation