Creekside Community Recreation Centre
1 Athletes Way
Vancouver, BC V5Y 1V4

Registration is open until May 23rd, 2025.

In order to provide the best experience possible, this event will be oferred in-person only. 

Refreshments and a light lunch is included with registration.

FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in Vancouver as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health, physical therapy, exercise, assistive devices, and more.

Don’t miss out on the opportunity to meet patients and families throughout the region, and network with FSHD Society leaders and activists in our community.

For those unable to provide the registration fee, scholarships are available with the following discount code: 

VAN360 

Please copy the code & paste on page 2 during registration.

The deadline to register is May 23, 2025