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Mia Shepard’s Fundraising Page

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In memory of Mia’s grandfather Richard Riley, please consider donating to the Joubert Syndrome and Related Disorders Foundation. All donations are tax deductible and help families affected by Joubert Syndrome across the globe.

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Thanks for visiting my fundraising page!

Mia is now 14 years old and was born with Joubert Syndrome. She is non-verbal communicating with her iPad and some sign language. She walked with a walker from the age of 2, at 7 years old she ditched the walker and now walks independently! She continues to meet milestones in her own time and constantly exceeds the expectations of her medical team. She has a multitude of challenges ahead for her lifetime, but she is very intelligent, creative, and has a great sense of humor.


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