Thanks for visiting my fundraising page!
Thanks for visiting my fundraising page!
Can you help me raise money for Josh, our nephew.
In May 2020, Josh was diagnosed with an ultra-rare genetic condition called Myhre Syndrome. There are so many symptoms he might have to face in his life but the scariest is how it affects the heart and lungs and sadly it is life-threatening. With only 200 people diagnosed in the world, research is limited and that’s why I’m raising money. All funds go towards advancing research, raising awareness and supporting the small Myhre community.
So, between now and the end of September I’m going to Move for Myhre and cycle 100 Miles!
Thanks for your support, the whole family really appreciate it.
https://www.classy.org/fundraiser/3403598
#moveformyhre
Martin Moate donated £20.80
Glad to be a part of the fundraising and enjoyed joining Mark on the 100 mile ride
Teresa Standen donated £26.00
Clare Vickers donated £19.76
Roger Carrington donated £26.00
Well done Mark
Erik G. Jensen donated NOK 104.00
Yesterday`s bike ride - well done :-)