Joubert Syndrome & Related Disorders Foundation  

"Fueled By Hope"

2025 Conference

Wednesday July 16th 2025 • 5:00 pm
Indianapolis, IN

About the Campaign

The Fueled by Hope conference offers a unique opportunity for families to connect, gain insights from the latest research, and access valuable educational resources.  

To offset the cost of conference registration, JSRDF is offering a fundraising opportunity to all families.  The goal of this fundraiser is to allow families who are attending the conference to fundraise to earn free entrance fees.

1. This fundraiser will allow those who choose to participate to earn one free registration to the 2025 JSRDF conference for each $1,000 raised by March 1, 2025. 

*Credit will only be applicable to registration, and it will not apply toward hotel fees or any other travel fees. The registration credit must be used at the 2025 conference and is non-transferable. 

2. Each participating family will create a fundraising page, set an individual fundraising goal, and gather donations to reach this goal. 

* The tracking of funds to reach the $1,000 must be done through this fundraising page, all funds raised outside of this fundraiser will not be tracked as part of this conference incentive.


We've raised $4.5K Our Goal $50,000

We're fundraising for the cause to make a difference!

You can help fundraise for the cause once you register. Or just make a donation.

Registration Info

All attendees will be given the opportunity to fundraise

2025 Conference Registration Fee Donations

Free

Support a Fundraiser

Top Individuals

View all
View Top Individual - 'Emily Holmes' fundraiser page using image
Emily Holmes

Emily Holmes has raised $945 out of their goal of $1,000

$945 raised (95%)
View Top Individual - 'Jen Boucher' fundraiser page using image
Jen Boucher

Jen Boucher has raised $800 out of their goal of $1,000

$800 raised (80%)
View Top Individual - 'Branden Ramirez' fundraiser page using image
Branden Ramirez

Branden Ramirez has raised $275 out of their goal of $3,000

$275 raised (9%)
View Top Individual - 'Halee Slavens' fundraiser page using image
Halee Slavens

Halee Slavens has raised $25 out of their goal of $1,000

$25 raised (3%)
View Top Individual - 'Ariel Davis' fundraiser page using image
Ariel Davis

Ariel Davis has raised $0 out of their goal of $1,000

$0 raised (0%)

Top Teams

View all
View Top Team - 'Queen Dorothy's Court' team page using image
Queen Dorothy's Court

Queen Dorothy's Court has raised $3,125 out of their goal of $3,000

$3,125 raised (104%) 4 members
View Top Team - 'Kallen's Kicks' team page using image
Kallen's Kicks

Kallen's Kicks has raised $1,100 out of their goal of $2,000

$1,100 raised (55%) 2 members
View Top Team - 'Branden' team page using image
Branden

Branden has raised $275 out of their goal of $4,000

$275 raised (7%) 4 members
View Top Team - 'Carter’s Joubert Syndrome Support System' team page using image
Carter’s Joubert Syndrome Support System

Carter’s Joubert Syndrome Support System has raised $25 out of their goal of $3,000

$25 raised (1%) 2 members
View Top Team - 'Team G$' team page using image
Team G$

Team G$ has raised $0 out of their goal of $1,000

$0 raised (0%) 1 member

Campaign Activity

See who supports your cause and what they have to say about it!

E

Elizabeth Hanson donated $100.00 and generously covered the transaction fee

3 days ago
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$100.00 was donated anonymously

8 days ago
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$100.00 was donated anonymously

18 days ago
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$50.00 was anonymously donated and fees were generously covered

a month ago