Joubert Syndrome & Related Disorders Foundation
"Fueled By Hope"
2025 Conference
About the Campaign
The Fueled by Hope conference offers a unique opportunity for families to connect, gain insights from the latest research, and access valuable educational resources.
To offset the cost of conference registration, JSRDF is offering a fundraising opportunity to all families. The goal of this fundraiser is to allow families who are attending the conference to fundraise to earn free entrance fees.
1. This fundraiser will allow those who choose to participate to earn one free registration to the 2025 JSRDF conference for each $1,000 raised by March 1, 2025.
*Credit will only be applicable to registration, and it will not apply toward hotel fees or any other travel fees. The registration credit must be used at the 2025 conference and is non-transferable.
2. Each participating family will create a fundraising page, set an individual fundraising goal, and gather donations to reach this goal.
* The tracking of funds to reach the $1,000 must be done through this fundraising page, all funds raised outside of this fundraiser will not be tracked as part of this conference incentive.
We're fundraising for the cause to make a difference!
You can help fundraise for the cause once you register. Or just make a donation.
Registration Info
All attendees will be given the opportunity to fundraise
2025 Conference Registration Fee Donations
FreeSupport a Fundraiser
Search for a fundraiser or team to support
Queen Dorothy's Court has raised $3,125 out of their goal of $3,000
Kallen's Kicks has raised $1,100 out of their goal of $2,000
Carter’s Joubert Syndrome Support System has raised $25 out of their goal of $3,000
Campaign Activity
See who supports your cause and what they have to say about it!
Elizabeth Hanson donated $100.00 and generously covered the transaction fee
$100.00 was donated anonymously
$100.00 was donated anonymously
$50.00 was anonymously donated and fees were generously covered