We are excited to announce our participation in the JSRDF - Fueled by Hope conference, taking place in Indianapolis in July of 2025. This important event is dedicated to supporting families affected by Joubert syndrome and related disorders, and it offers a unique opportunity for learning, connection, and advocacy.

The JSRDF's mission is to provide C.A.R.E. – Connection, Awareness, Research, and Education – to those affected by Joubert syndrome and related disorders. The Fueled by Hope conference embodies this mission by bringing together families, medical professionals, and researchers to share the latest advancements and offer support to those in need.

Attending this conference is a vital step for us, but we need your help to make it possible. By reaching our fundraising goal, we will be able to have our entrance fees waived, allowing us to fully participate and benefit from the resources and connections the conference provides.

We are asking for your generous support to help us achieve this goal. Your donation will directly impact our ability to attend the conference, where we can:

• Connect with other families and build a strong support network.
• Raise awareness about Joubert syndrome and related disorders in our community.
• Gain insights from the latest research and medical advancements.
• Access valuable educational sessions and materials.

Your contribution, no matter the size, will make a significant difference in our journey. Together, we can fuel hope and provide the C.A.R.E. that so many families need.

Please consider making a donation today to support our attendance at the JSRDF - Fueled by Hope conference. Your kindness and generosity will help us bring back invaluable knowledge and connections to our community.

Thank you for your support and for being a part of our mission.