Thanks for visiting my fundraising page!
Thanks for visiting my fundraising page!
Please help me support the Usher Syndrome Coalition, in honor of our global Usher Syndrome Awareness Day on Saturday, September 16th, helps us shed light on the most common genetic cause of combined deafness and blindness, while accelerating research to find a cure.
#crushush by requesting a proclamation in your state to your Governor! My profile picture is this year's proclamation signed by Governor Phil Bryant of MS! As of posting this fundraising event, there are currently 12 other states in the works of doing the same. You make check the latest happenings on my FaceBook page, @take5another5 Usher Syndrome Challenges.
#crushush by joining the #ushbracelet 2017 campaign aka Usher Syndrome Awareness Bracelet. I designed, created and introduced last August, 2016. The latest happenings of this campaign is on my FaceBook page, @take5another5 Usher Syndrome Challenges. Proceeds from this campaign will be donated to this event. I will be making deposits throughout this event noted as #ushbracelet. You may email me directly to take5another5@gmail.com requesting "How to order Ushbracelet".
Please donate directly towards my Own the Equinox fundraising page. Your donation will help us #crushush in sight restoration. I'm nervous of facing total darkness. My tunnel vision as it stands now, is less than 10 degrees and invades my life DAILY.
The donation process is fast, easy and secure. I and my #ushcommunity around the world thank you so much for your support. Don't forget to send this page to your friends and family you think might be interested in donating! Many many thanks and God Bless!
Danay Trest donated $150.00
USH Bracelet 2017
Danay Trest donated $167.00
USH Bracelet 2017
Kate Lenig donated $25.00
Alaina Sullivan donated $26.63
Margaret James donated $25.00