Please help Anna support the Myhre Syndrome Foundation by making a donation through her page.

Anna is hoping you will help her by helping MSF support more research. Every donation counts!

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Myhre syndrome is an extremely rare genetic disorder, each Myhre warrior is different but common characteristics include hearing loss, stiff joints, short stature, intellectual disability, cardiovascular and respiratory problems that can lead to life-threatening complications. Currently there is no cure.

With your help the Myhre Syndrome Foundation can get more answers, fund more research and strive to find a cure to stop the progression of these symptoms.

The Myhre Syndrome Foundation not only contributes towards research but also provides invaluable resources to people with Myhre syndrome, their families and medical providers.

Thanks so much for your support and please send this page to any friends who you think might be interested in donating!

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Anna doing her part at the NIH. She is participating studies there to understand the immune system and Myhre syndrome.