Our son Clark is 4 years old and was diagnosed with Myhre Syndrome in 2018. We are fundraising for the Myhre Syndrome Foundation's first ever annual fundraising event. As the syndrome is extremely rare, and those affected are spread all over the world, we are setting up small local events in our areas to occur on the same weekend. Our family will be holding a lemonade stand and bake sale on Sunday, September 26th from noon to 4pm. If you're in the area, please message me for our address and stop by. If you can't make it, please consider donating here online.

Myhre syndrome is an extremely rare genetic disorder, each Myhre warrior is different but common characteristics include hearing loss, stiff joints, short stature, intellectual disability, cardiovascular and respiratory problems that can lead to life-threatening complications. Currently there is no cure.

With your help the Myhre Syndrome Foundation can get more answers, fund more research and strive to find a cure to stop the progression of these symptoms.

Thanks so much for your support and please send this page to any friends who you think might be interested in donating!

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