Rowdy Ray is a beautiful 4 year old little boy diagnosed with oculodentodigital dysplasia a rare syndrome that’s causing hypomyelinating leukodystrophy, along with progressive cerebral atrophy. Rowdy is always happy despite the struggles he often faces and can light up any room with his contagious smile. Our wish is to purchase a wheelchair accessible van for Rowdy so we can have a more comfortable form of transportation as he continues to grow and for us to have room to fit Rowdy’s equipment and other needs. We are often on the road for Appointments, School, therapy and we love staying busy making memories. We strive to give Rowdy the best life and take in every moment we have with him.

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