Amanda Martinek was born with this very rare condition, which we did not get a proper diagnosis until after she passed away. We are hoping to bring awareness not only to Myhre Syndrome but to rare diseases as a whole.

Our individual team members have combined digital forces to create this awesome fundraising team. Together we will raise more money for the Myhre Syndrome Foundation than we ever could alone!

Myhre syndrome is an extremely rare genetic disorder, each person with Myhre is different but common characteristics include hearing loss, stiff joints, short stature, intellectual disability, cardiovascular and respiratory problems that can lead to life-threatening complications. Currently there is no cure.

With your help the Myhre Syndrome Foundation can get more answers, fund more research and strive to find a cure to stop the progression of these symptoms.

Thanks so much for your support and please send this page to any friends who you think might be interested in donating!

Want to help?

Support by making a donation to our team. The process is fast, easy, and secure... or come join the squad!